Tuesday afternoon is when I received the call from
my doctor confirming I had high-grade (moving FAST), invasive (it was going
EVERYWHERE) carcinoma...aka IBC. I called Julie my friend from high school that
is in residency for radiology-oncology (the part of oncology that does the
radiation at the end). Her attending had contacts in Dallas at UT Southwestern
and called them Wednesday with my story. My doctors over at UT cleared their
Thursday schedule to meet with me for what turned into hours (felt like minutes
when I was with them though). My oncologist set up a plan for starting chemo
the next Monday (the soonest we could do it based on the other tests that still
needed to be run). I had a blood test (a couple indicators of potential cancer
spread), liver sonogram (see if they could find any cancer spread to there) and
an echocardiogram (see if my heart is strong enough for the chemo) on Friday
morning.
Late Friday evening Dr. Unni (my oncologist) called
with first good news of the week- all the tests came back normal and didn't
show any indication of cancer spread (with the limited checks they could
perform now). The rest of the normal protocol scans will take place after I
deliver. That will give us actual staging and will let us know exactly how big
this battle will be, or if there will even be a battle. I'm just continuing to
pray that the doctors will keep wanting to treat me and keep believing it is
worth it to keep trying stuff and moving forward. That is why a Stage 3B or C
diagnosis would be amazing. (Has anyone ever said that before??)
At the same time that week I had doctors through my
OB office/hospital system also moving heaven and earth to get me into their
schedules and I met with them for a second opinion. It was very encouraging to
hear that they had the exact same plan for treatment. They were all super nice;
I especially enjoyed my oncologist at Presbyterian Dallas. I left her on Friday
with a lot of hope going into the weekend.
Also at the same time, I was trying my darndest to
get into MD Anderson- the leading research institute on cancer in general but
also for my specific kind of cancer. They have an IBC clinic that treats over
100 cases a year. I was able to get an appointment with them 2 weeks after diagnosis,
which I hear, is very difficult to do. Normally it takes months to get an
appointment. I'm thankful for another friend named Rachel that I knew from
college that is working there and helped me get connected to the right folks
and advocated for me. Next Sunday we will drive to Houston, stay with some of
our best friends, and then have an appointment with the IBC clinic director,
Dr. Valero. He is one of the leading researchers of IBC and if anyone
understands anything about this disease, it is him.
Brad and I are ridiculously thankful for how
extremely fast all the nurses, doctors, lab pathologists, coordinators moved
last week. Everyone understood the gravity of my situation and the speed at
which my cancer moves/is moving and responded appropriately. For that we are so
grateful.
We are also really grateful for the seemingly impossible decisions to
make - what team to choose, how to bring in MD Anderson, when to start
treatments, when to deliver David, what drugs to start off on, to start chemo
with or without a baby - were all really easy. Starting at the beginning of the
week I didn't know how we would make these potentially life and death
decisions, but by the end of the week everything was crystal clear. Some of our
friends and family who we told last week were praying for that specifically,
and I know that was an answer to that specific prayer. I'm trusting God to
continue leading us where he would have us go and do.
I am glad I could help out, even if just a tad. Let me know if you need ANYthing at all. I see miracles happen here everyday!! We are talking fraction of a percentage beating the odds! Praying for you and the family, and we will lift you up in my small group tonight! Love, Rachel
ReplyDeleteWow - lots has happened in such a short time. I thought I had most of the background and didn't know all this! Praying for you throughout the day. Praying that in Jesus name that your cancer is miraculously gone from your body.
ReplyDeleteAshley, My thoughts and prayers are with you and your family. Please let me know if there is anything at all I can do. Love, Joane
ReplyDeleteThank you for the updates, Ashleigh. Know that I'm praying for you constantly as you sleep from over here in Japan.
ReplyDeleteAshleigh & Brad - We're praying for you! Praise God for how He's already working, and for your incredible example of faith and love.
ReplyDeletePsalm 121
1 I lift up my eyes to the mountains—
where does my help come from?
2 My help comes from the Lord,
the Maker of heaven and earth.
3 He will not let your foot slip—
he who watches over you will not slumber;
4 indeed, he who watches over Israel
will neither slumber nor sleep.
In His love,
Billy & Alyssa
Ashley, I read that fasting before and during chemo can heighten the therapy benefits: http://www.the-scientist.com/?articles.view/articleNo/31708/title/Fasting-Heightens-Chemotherapy-Benefits/
ReplyDeleteMy thoughts are with you.
Love,
Joane